HUGE NEWS!!!!

Addisyn had her follow with her Neurologist today! She came in and Addisyn was so vocal and so happy! She was kicking all over the place and just acting wild overall....

Anyway, Dr. Brown asked all of the usual questions about her seizures and so on and then told us what we wanted to hear so badly....

Addisyn is going to be weaned off of the Phenobarbital!!!!!!!!!!! I thought I was going to scream....I was so excited yet so freaked out at the same time! She is currently on a very small dose of Phenobarbital and Keppra however her Phenobarbital has never been increased since day one so she has kind of been self weaning for a couple of months anyway. John and I can't wait to see if things start to speed up with her once she is completely off that medication. I have been told over and over by several families that once their babies were off of the Phenobarb they were totally different kids... some could finally hold their head on their own or start crawling or standing....We are so optimistic that good things will be coming in the near future!

So, Dr. Brown went out to write up a plan for the weaning and then brought it into us to review. We were to start the weaning process TONIGHT!!!! When she said that I kind of got nervous.... It was so soon, but it was something that we have wanted for what seems like forever!!!! We are to take her dose down .5 a CC every week. She will be completely off of the Phenobarbital as of July 21st. Now, it is possible that she will have some breakthrough seizures between now and then so if that happens there is plenty of room to increase her Keppra. The plan is to get her on just one medication!

Thank you all for you continued prayers and support!

Love,
Krissta

P.S. I will try my hardest to do a blog tonight or tomorrow with all new updated pictures!